Living in the Shadow of Anorexia Nervosa

Living in the Shadow of Anorexia Nervosa
A guest post by Rebecca Perkins

Eight years ago I finally faced up to the fact that all was not well with my beautiful 14-year-old daughter’s health. She had over many months and in all reality a number of years been gradually changing her eating and exercise habits. I didn’t want to see, I didn’t want to name what I suspected was happening to my girl.

The numerous trips to the doctor, the hospital trips for any number of ‘presenting’ conditions hid from all of us — family, doctor, friends, consultants — the fact that my daughter was suffering from Anorexia Nervosa. I was witnessing the gradual diminishing of my daughter. Her weight, her energy, her vitality, her general well-being and health were not what they were. The lack of concentration, her mood swings, and her withdrawal from life were all the evidence I knew I needed.

What unfolded next is a mother’s worst nightmare — the fear, the guilt, the anxiety, the sadness, the anger, the distress, the desperation. My daughter was sick. I had so many questions I wanted to ask her, the psychiatrist, the nutritionist, the psychotherapist, myself. I wanted to know why, I wanted to know how. This illness rocked our family to its foundation. My husband (at the time) was unable to come to terms with her illness. We have never spoken about it and are unlikely ever to do so. My sons were bewildered. The eldest (17 at the time) felt an enormous sense of guilt — “if I’d been a better brother”… “if I’d been around more” … “if I hadn’t done as much sport” … My youngest (8 at the time) withdrew completely, daydreamed his way through school and cried. His words still resonate, “I just want my sister back.”

I carried the weight of not only her illness but the emotional turmoil it was causing in our family. I supported my sons and my wider family in their anxieties. I found some support amongst my friends and my sister, but felt completely isolated and alone.

One of the hardest issues I had to deal with was recognizing and understanding that I couldn’t “fix” her. I couldn’t make her better, I couldn’t give her paracetamol or put a band-aid on a grazed knee. This illness was hers, not mine. She had to want to heal herself. In a way, I had to watch events unfold and be there with unconditional love for her at all times. When the rage came I stood and took the full force. When the tears came I sat and comforted. When the rejection of food came I suggested something else that might appeal. When the fear came I held her in my arms.

Friends and family asked me how I did it. How I coped day to day, week in week out, being constantly there for the family and my daughter. I’m not sure I had any other choice (yes of course we always have a choice, we can choose our attitude even when things seem impossible). I chose to get on with it. I chose to do all I could to be there for my family. I chose to allow my daughter to take control of her illness, her life.

I found a way to separate my daughter’s identity, the real person, from the behavior, which was the illness. I coped with whatever the “behavior” threw at me. My daughter wasn’t her behavior. Thinking back to how we parented when our children were young — we loved the child but didn’t like the tantrums. This is how I made sense of it in my head.

I now appreciate how resilient I am, how I bounce back after setbacks. I believe this is the case because I choose to live my life fully — ups and downs. Even today, 8 years on from her diagnosis, and I struggle to write without tears. Anorexia lived in our house for some time, casting a heavy shadow. It moved on, my daughter is well and living her life having learned like all of us from the experience.

This post originally featured in The Huffington Post and is reprinted here with full permission.


About the Author: Rebecca Perkins

Rebecca Perkins is the author of Best Knickers Always: 50 Lessons for Midlife and founder of RebPerkins.com. Her latest book 40 Words of Wisdom for my 24 Year Old: A Parenting Manifesto (originally a Huffington Post blog) was published in April.

 She began writing to make sense of her life after the ending of her 20 year marriage. Rebecca is a NLP Master Practitioner and Personal Performance Coach working with women to navigate the transition of midlife. She is passionate about midlife as a time for renewal and for living the second half of life with enthusiasm and vigour.

 As a coach she is challenging and fun, motivating and inspiring. Midlife has taught her to be open-minded, to take more risks, to enjoy the simple things and to live each and every day with the question, ‘If not now, when?’ She lives in London and enjoys supporting and being surrounded by her children, spending time with her guy and celebrating life after 50.

 You can contact Rebecca via her website and follow her on FacebookTwitterand Pinterest as well as YouTube.

Follow Rebecca on Instagram for her 365 days of self care #365selfcare 

(I recently read Rebecca’s book, Best Knickers Always: 50 Lessons for Midlife. It’s rich, warm and wonderful and full of practical, insightful ideas – a great read.)

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Love and lead. 

First, we love. Validation lets them know we see them. Validation is a presence, not a speech. It’s showing our willingness to sit with them in the ‘big’ of it all, without needing to talk them out of how they feel.

It says, ‘I see you. I believe you that this feels big. Bring your feelings to me, because I can look after you through all of it.’

Then, we lead. Our response will lead theirs, not just this time, but well into the future. 

If we support avoidance, their need to avoid will grow. The message we send is, ‘Maybe you aren’t safe here. Maybe you can’t handle this. Maybe your anxiety is telling the truth.’ 

Of course, if they truly aren’t safe, then avoidance is important. 

But if they are safe and we support avoidance, we are inadvertently teaching them to avoid anything that comes with anxiety - and all brave, new, hard, important things will come with anxiety. 

Think about job interviews, meeting new people, first dates, approaching someone to say sorry, saying no - all of these will come with anxiety.

The experiences they have now in being able to move forward with anxiety in scary-safe situations (like school) will breathe life into their capacity to do the hard, important things that will nourish and grow them for the rest of their lives. First though, they will be watching you for signs as to whether or not anxiety is a stop sign or a warning. The key to loving bravely and wholly is knowing the difference.

Teach them to ask themselves, ‘Do I feel like this because I’m in danger? (Is this scary dangerous?) Or because there’s something brave, new, hard, important I need to do. (Is this scary-safe?). Then, ‘Is this a time to be safe or brave?’

To show them we believe they are safe and capable, try, ‘I know this feels big, and I know you can do this.’ Then, give them a squeeze, hand them to a trusted adult, and give them a quick, confident goodbye. Their tears won’t hurt them, as long as they aren’t alone in their tears.

It doesn’t matter how small the steps are, as long as they are forward.♥️
I'm so excited to be speaking about separation anxiety at the Childhood Potential Online Montessori Conference. 

The conference will involve conversations with over 40 other experts, and will take place from 27-31 January 2025. This is for anyone who is an important adult to a young child or toddler. 

I'd love you to join me. See more here 
: http://childhoodpotential.com/?a_box=ncw8h43m&a_cam=1
New, hard, important, brave things will always come with anxiety. It’s the anxiety that makes these things brave.

The only way for kids to never experience anxiety is for us to never put them in front of anything growthful, new, hard, brave. They’ll never feel the discomfort of anxiety, but they also won’t grow and strengthen against it. 

We’ll never get rid of anxiety and we don’t need to. The key to strengthening young people against anxiety lies in helping them feel safer with it. 

Here are 3 ways to do that. First though, and most importantly, establish that they are actually safe - that they are relationally safe, and that they feel safe in their bodies.

1. Take avoidance off the table. Avoidance makes anxiety worse by teaching the brain that the only way to stay safe is to avoid. Little steps matter - any step, even the tiniest, is better than none.

2. Show them you can handle their anxiety and the big feels that come with it:

‘Of course you feel anxious. You’re doing something big. How can I help you feel brave?’ 

Or, ‘I know this feels big, and it feels like you can’t. I know you are safe and I know you can. You don’t need to believe it because I know it enough for both of us. I know you won’t believe it until you see it for yourself. That’s okay, that’s what I’m here for - to show you how amazing you are and that you can do hard things. I can take care of you through the ‘big’ of it all. What’s one little step you can take? Let’s take it together. And don’t say ‘no steps’ because that’s not an option.’

3. Help them understand why they feel the way they do when they are anxious, otherwise they’ll interpret sick tummies, sore tummies, racy heart, clammy skin, big feelings as a sign of deficiency or potential disaster. It isn’t. It’s a sign of a brain and body trying to protect them, at a time they don’t need protecting. 

As long as they are safe, the need to avoid is often more about needing to avoid the thoughts, feelings, and physiology of anxiety, rather than avoiding the thing itself. This is why the physiology of anxiety will continue to drive anxiety until we make sense of it. ‘Hey Warrior’ will help you do make sense of it for them.♥️
Anxiety is about felt safety. It doesn’t mean your young one isn’t safe. It means they don’t feel safe. 

The question then is, what would help them feel safer? This doesn’t mean anxiety will go away, and we don’t need it to. What we’re looking for is what would help you feel braver and safer, even when you’re anxious? 

It also doesn’t mean school is doing anything wrong. But maybe there are little shifts that will make a big difference.

There will always be anxiety whenever there is something brave, new, hard, or growthful to do. But anything we can do to help them feel safer, will help anxiety feel more manageable, and hard things feel more do-able. 

So let’s have the conversation. What’s@one thing school could do that would help your child feel safe enough, so they could do brave enough. There are no wrong answers.♥️
One little brave step at a time. It doesn’t matter how big the steps are, or how long it takes as long as the steps are forward. 

The steps won’t always feel gentle. The big feelings that come with this won’t hurt them, as long as they are safe and they aren’t alone in their distress. Lead, with love. ‘I know this feels big, and I know you can do this. I’m right here with you. We’ll handle this together.’ 

It doesn’t have to be you who is with them, as long as it is someone they feel safe with and care about by - a teacher, a relative, a grandparent - any important adult in their lives who can help them feel seen, loved, and safe through the storm.♥️

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